Tuesday, January 3, 2012

I have an absolutely beautiful daughter. She is so kind and sweet with a heart of gold. And on the outisde, she absolutely gorgeous. As her mother, I count my blessing daily for her. But this precious child of mine suffers from Trichotillomania. I know it is really hard on her but today I have to be honest and say that this is just killing me.

Here is the techinal version:

What Is Compulsive Hair Pulling?


this is an example of what it looks like.this is not my daughter 


Trichotillomania

Trichotillomania (trick-o-til-o-MAY-nee-ah) is a disorder that causes people to pull out the hair from their scalp, eyelashes, eyebrows, pubic area, underarms, beard, chest, legs or other parts of the body, resulting in noticeable bald patches. Hair pulling varies greatly in its severity, location on the body, and response to treatment. For some people, at some times, trichotillomania is mild and can be quelled with a bit of extra awareness and concentration. For others, at times the urge may be so strong that it makes thinking of anything else nearly impossible.

My daughter is a freshman in high school this year. She started pulling her hair in fifth grade. By the time sixth grade had started, she had no hair from about behind her ears forward. She wore a head covering every day. People did not know what was wrong, many thought she had cancer because of the hair loss.

When I first noticed her pulling her hair, she was already seeing a counselor. They had no idea why she was pulling, so I took her to a psychiatrist. The medine they gave her first made her sick, and then made her suicidal. The doctors were not very sympathetic. They felt that she was in danger and wanted to hospitalize her. I took her off the medicine. She wasn't suicidal anymore but there were other problems. We finally found a wonderful doctor who has been working with her for the last almost four years.


back of my daughter
Her hair grew back in and it was so lovely. It was curly where it has used to be straight. People thought she had a permanent. She is tiny little thing, just beginnng to develop. Over the summer, the signs of maturity were all there. He hair pulling had almost all but stopped, though at times we noticed she would pull out her eyelashes. And then she started high school.

Her anxiety was at a all time high, Most of the students she knew from before, weren't the ones she went to middle school with. So these girls only remembered her from when she had pulled her hair out. And my god, girls are so mean. They talked about her behind her back, telling people what she had done, calling her crazy. And all that excitement she was feeling towards high school became now just an overwhelming dread. By Thanksgiving, she didn't want to go to school. Every morning was a battle. She was sick to her stomach. I tried to talk to the school adminstrators and her teachers but there was little they could do if my daughter didn't want them to do anything. She was scared of any type of retaliation. All of her doctors, trusted adults and her father and I tried to help.
But she started pulling again. Damn it! And by the time I really noticed, so much of her hair had been pulled out that she could barely cover it up. Now she really didn't want to go to school. We are on winter break right now. We have increased her anxiety medicine, scheduled some extra appointments with her psychologist and have met with her psychiatrist. The hair pulling has slowed but the damage is done.
What triggered it this time. Was it the bullying at school, was it the changes at home since we started DD (meaning less chaos), or is it something I will never figure out.

And now what do I do to help her. What is in her best interest? My heart is breaking.

14 comments:

  1. What a difficult situation. I wish I had some advice for you, but I'd never heard of this before. My heart would be breaking too. Does she have friendships outside of school? If not, perhaps getting her involved with a new group of teens would help, perhaps some of the ones she went to middle school with or by getting her involved in a sport or organization outside of school. I'm going to lift her up in my prayers and I hope that some answers or help is found, so she can move on in a more positive direction. (((hugs)))

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  2. Blondie, shot me an email, I think I can help you here but I don't want to reveal too much personal info. on the blog PetriesNot@hotmail.com.

    Laurie

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  3. Blondie, my heart just breaks for you as a mother. I'll be praying for you and your daughter.

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  4. How heartbreaking! Will be praying for ya!!

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  5. My thoughts and prayers are with you and your daughter.

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  6. Oh how hard for her! I did this in fifth grade myself. I do not know why I started or stopped. I'll be praying for both of you. Why oh why are kids so mean at times?

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  7. Blondie, my heart hurts with yours. My daughter is 19 and suffers from bulemia, she is also beautiful and does not see it in her stress. From my experience, the best advice i can give is to educate yourself as much as possible and understand you did not cause this. My daughter also has OCD and anxiety which are common with bulemia. We had to try several medications to get the right match for her. Also be sure to research her caregivers to be sure they have experience with her symptoms, our first psychologist actually causesd harm. Go online for specialists in your area, you may need to go outside of your insurance network as we did but the intervention was what she needed. Love yourself and her, take each day one at a time, dont focus on failures, but shout out each success. You are in my prayers

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  8. Grace has a good idea - encourage her to develop interests and friendships outside high school so she has something positive and has some support.

    The most heart breaking moments are when we know a child of ours is hurting and don't know how to help.

    I'll add my prayers as well!

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  9. How about homeschooling her? Most areas have great homeschool groups, depending on where you live they have proms, graduation, sports teams, etc.

    People can say what they want about homeschooling and homeschoolers but my children have NEVER been bullied. That's not the reason I teach my children, but it's a wonderful side effect. I've graduated 3 so far and #4 graduates in May:). They've all gotten scholarships to college, etc.

    If you would like some info, I'd be glad to help.

    Love,
    Kitty

    kittylovesdaddy@gmail.com

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  10. Thanks to all of you for your kind words of support, your prayers and your advice. My daughter has been fighting her Trichotillomania for four years, this month. She has had and still has a psychiatrist and a psychologist. She has been taught alot of cognitive skills to help her too. As a matter of fact, she took up painting and has become a really good artist.
    My two older boys do independent study, and she did for her second semester of 8th grade. We thought that she would benefit more socially if she returned to regular high school. We have two weeks to decide if we put her back into independent study. We also need to hope that B, my husband and her father, makes the right final decision about the schooling. (I know, not very submissive of me but I am working on this) We really do need to work on getting her involved in some clubs, though she did join a couple at high school and is enjoying those.
    This post was mostly for me to gripe and whine. I feel lost and helpless. I pray for guidance and for the wisdom to do what is right for her. I pray for the other girls who have no reason to be mean. And I pray that my daughter will rise above all of this and to find the strength to fight this hair pulling.

    Thanks again, and please know that I am always looking for advice and different options for her. So please don't hesitate to comment.

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  11. Girls can be so cruel, and in an atmosphere of a social pecking order, they are always jostling for position. I think even the sweet ones think to themselves "bully or BE bullied" and so they fall in and join in.


    I agree, some outside circles are very necessary. Getting involved and forming friendships outside of the bullying group is critical.


    My heart breaks for you. Our mothering protective instincts are so strong, I bet you'd like to pull all their hair out!!


    You are doing so much to help her, a lot of the right steps. I'll pray that the next measures you take go far in resolving things for your troubled sweetie.

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  12. Oh Blondie, I just now saw this post. ((HUGS)) to you. I know how worried you must be about her!
    It's such a hard and scary feeling when your children struggle with things like this.

    I'm sure you also feel somewhat alone in daily life as this problem is probably rare.
    Thank you for trusting us here in blog land by letting it our on your blog. We are here for you.

    My thoughts and Prayers are with you and her.

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  13. You took your new post down. Ackkk! I need it! Email me if you can, jared.rogue@gmail.com.

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  14. Blondie, this is so heart breaking. We have had to deal with bullies as well but it was long ago. Our schools have a no tolerance policy now. I wish I knew what to say that would help. I know that she must appreciate your love and support, and getting her help somehow is your biggest concern. I do hope that the bullying stops. Isn't hard enough for her? Makes us all shake our heads, doesn't it? I do hope you find a solution soon.

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